[…] years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, Dr. Rabi Tawil and […]
What Would You Like to #AskTheResearcher?
Tune in to our Ghostly Gala 2 Livestream
[…] will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada Club located at 617 Olive Street […]
#GivingTuesday is Just Around the Corner!
[…] in our efforts to raise even more funds this year to support those affected by FSHD and to fund important research to take one step closer towards finding a cure! […]
Gratitude
[…] Light,” which chronicles the long, arduous journey that has brought us from a world where FSHD and those who live with it were in the dark, to a place illuminated […]
2015-2016YTD Donor impact report. 25 years of transformation
[…] FSH Society, an organization that has dedicated its entire existence to a better life for FSHD families. I feel humbled to receive this recognition, proud of my excellent team of […]