” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″] We had a wonderful Bay Area FSHD Family Day conference with speakers from Stanford, UC Davis, University of Nevada Reno, followed by a lovely gala […]
Fourth Annual Songs in the Key of Steven Blier (PHOTOS)
New documentary tells one family’s story about FSH muscular dystrophy
[…] film documentary, based on her family’s multigenerational experience living with facioscapulohumeral muscular dystrophy. We learn how FSHD affects individual members of her family in different ways. The documentary is a powerful, personal “coming out […]
The Moving Story of George Pollock’s quest to Race Across America
[…] George Pollock, who is racing across America this June to raise awareness and funds for FSHD, was featured in his high school’s magazine. In the article, George discusses what gave […]
FSH Society grant award for myostatin study
[…] to enable muscle to achieve greater mass than it otherwise would. In conditions such as FSHD, where muscle mass is lost, a myostatin inhibitor would in theory enable muscle to re-grow without […]
Our new Physical Therapy brochure
Hot off the press, here’s our updated Physical Therapy brochure! Co-written by leading FSHD experts Katy Eichinger, PhD, Shree Pandya, PT, DPT, MS, and Wendy King, PT, the brochure provides […]