[…] hospitals. Lefebvre was Secretary of the FSH Society Board of Directors from 1991-2007. As an FSHD patient, he was interested in expediting a solution to the FSHD problem. Mr. Lefebvre […]
In memorium: Richard Lefebvre, former FSH Society Board member
A Segway for mobility
[…] a Segway I immediately recognized it as something that could possibly help my mobility. My FSHD had progressed to the point where I was having difficulty walking. At my first […]
FSH Society Talk Radio with Dr. Charis Himeda
[…] many years, and is currently using cutting-edge technologies to examine mechanisms of epigenetic dysregulation in FSHD muscle cells and explore potential avenues of therapy. In 2016, Dr. Himeda received the […]
Fourth Annual Songs in the Key of Steven Blier (PHOTOS)
” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″] We had a wonderful Bay Area FSHD Family Day conference with speakers from Stanford, UC Davis, University of Nevada Reno, followed by a lovely gala […]
New documentary tells one family’s story about FSH muscular dystrophy
[…] film documentary, based on her family’s multigenerational experience living with facioscapulohumeral muscular dystrophy. We learn how FSHD affects individual members of her family in different ways. The documentary is a powerful, personal “coming out […]