[…] clip, click here. After being diagnosed at 19 years old, Brchan has battled the effects of FSHD most of her life. “It was very hopeless,” said Brchan. “They knew very little about […]
FSH Society Supporters Dr. Michael Kyba and Marge Brchan Share Their Story With FOX 9 Minneapolis
Rare Disease Day at NIH
Frank Kolakowski and Manuel Gomez, FSHD advocates extraordinaire, were on hand to represent FSH muscular dystrophy at this year’s National Institutes of Health Rare Disease Day event. Thank you!
DIY Toolkit
[…] includes social media resources, tips and tricks, and Frequently Asked Questions. Social media resources including FSHD Society Logos and images for use on social media can be found in the […]
Ask the Physical Therapist: Zero-Gravity Treadmills, Strength Training, and Braces for Lordosis
[…] agree with? The general thought in the past is that strength training was harmful for FSHD—that is not the case now. Moderate-intensity strength and aerobic exercises have been found to […]
Ask the Physical Therapist: What are the best exercises for different muscles?
[…] thing to consider is that, depending on the degree of weakness of a person with FSHD, some muscles may be working or exercising to their maximum just to perform everyday […]