[…] FSH Society, an organization that has dedicated its entire existence to a better life for FSHD families. I feel humbled to receive this recognition, proud of my excellent team of […]
2015-2016YTD Donor impact report. 25 years of transformation
Gratitude
[…] Light,” which chronicles the long, arduous journey that has brought us from a world where FSHD and those who live with it were in the dark, to a place illuminated […]
Women’s health with Dr. Loralei Thornberg
[…] in the possibility of estrogen supplementation. There is no current data that estrogen improves overall FSHD disease progression. The lack of studies on women is prevalent in this situation. It […]
Shaking Qigong to relax your body
[…] 1998 and has had a daily Qigong practice since 2005. In 2005, just after her FSHD diagnosis, she joined Master Zhongxian Wu’s lifelong training program for Qigong. Since then she […]
#GivingTuesday is Just Around the Corner!
[…] in our efforts to raise even more funds this year to support those affected by FSHD and to fund important research to take one step closer towards finding a cure! […]