[…] to improve the accessibility of university properties. She also serves as a moderator of the FSHD Teens/Young Adults Facebook community. As a member of the FSH Society’s scientific journal club, […]
Carden Wyckoff elected to Board of Directors
A comedian’s worst nightmare
[…] notice confidence and determination of these patients and families, boldly demanding recognition and action on FSHD? We know the direction we need to go. That’s why you can donate with […]
An undeniable sense of optimism
[…] up our game is NOW! More pharmaceutical companies are working to find solutions, the global FSHD environment has deepened with new discoveries, and, through your continued support, we are funding […]
Video: Molecular therapy for FSH muscular dytrophy
In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the […]
We bring people together to fight FSH muscular dystrophy
[…] another to form a clinical trial research network, which is vital to the future of FSHD clinical trials. All of this is possible because of your loyal and generous support […]