[…] will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada Club located at 617 Olive Street […]
Tune in to our Ghostly Gala 2 Livestream
What Would You Like to #AskTheResearcher?
[…] years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, Dr. Rabi Tawil and […]
Fall vaccine guide
[…] severely ill and being bedridden for a time can result in loss of muscle. With FSHD, it is that much more difficult to recover muscle volume and strength. Respiratory illness […]
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on […]
Walkers and Wheelchairs 101
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.