[…] group of women who meet monthly on Zoom and share a common bond of having FSHD. “We speak openly with each other, however we maintain confidentiality of who shares what, […]
Managing Fatigue
Raising our voice to raise our seats!
[…] the truth of this statement took place over the last several months, right within our FSHD community. We learned that Medicare initiated a process to receive comments and stories answering […]
Chipotle Fundraiser in Castle Rock, CO
[…] selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock, CO on Tuesday, […]
Feeling Fit: Exercising your hands and arms
[…] experience weakness that affects their hands, wrists, and forearms. In our March Feeling Fit with FSHD Zoom sessions, Frank Hanley takes you through exercises to keep your hands and arms […]
New paper in Developmental Cell
[…] genes regulated by DUX4 and suggests possible mechanisms for causing muscle damage that might be targeted for developing therapies “DUX4 Activates Germline Genes, Retroelements, and Immune Mediators: Implications for FSHD” More