[…] of us) and four years later are still using the same one. This isn’t really FSHD specific, but many of us are at the age when hearing aids are in […]
Accessibility Hacks, mobility aids, and tips (Part 3 of 3)
The Physiatrist’s role in managing FSH muscular dystrophy
[…] never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, […]
Rare Disease Day Rare Talent Challenge
[…] better. Share a video or photo of your rare talent via social media using # FSHDRareTalent Tag three friends asking them to share their rare talents via social. In lieu […]
Mark Stone webinar now available
[…] In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families […]
Intelligent orthotics step forward at the MIT Media Lab
During the 2014 biennial FSHD patient conference in Boston, the FSH Society arranged for a group to visit the MIT Media Laboratory, where Professor Hugh Herr leads a visionary team […]