[…] three years. Please join us in thanking the Mackays for their extraordinary leadership in the FSHD community by making a gift in honor of their Lake Party. The Mackays will match […]
Lake Party Thank You Party – Matching Gift Challenge!
Children’s Book Author Belinda Miller Supports the Society through Donations
[…] teacher, transitioning later to a career as an underwriter and legal assistant. She says that FSHD, being a slowly degenerating disease, allowed her to do a lot of living in […]
Stay warm and safe
[…] Hour invited Dr. Mark Tarnopolsky of McMaster University to discuss an issue that many with FSHD face in winter: feeling especially susceptible to cold temperatures. He explains the role of […]
A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000
[…] of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000 for FSHD research More. Many thanks to Steven Blier, Kelli O’Hara, Judy Seslowe, Beth Johnston, Bob […]
Exciting news to report!
[…] was published online in Nature Genetics identifying the mutation in a gene causing the non-chromosome-4-linked FSHD disease called FSHD1B or FSHD2 More. Read abstract and paper online at Nature Genetics […]