[…] Washington to find drugs targeting the DUX4 pathway, and the curious link between telomeres and FSHD. The issue offers inspiring stories about patients who have found creative ways of coping […]
FSH Watch Spring 2013
Ask the Physical Therapist: Can braces or taping assist weak muscles?
[…] posted in the future. Q. I am a physical therapist also and my son has FSHD. Has there been research done on using braces or taping techniques to assist weak […]
Music Therapy and Facioscapulohumeral muscular dystrophy
The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses […]
Los Angeles Abilities Expo, Calling All Artists!
[…] the 2016 Los Angeles Abilities Expo (February 5-7) on the theme of artists living with FSHD. Creative artists of all genres are welcome to join our booth. It’s a great opportunity […]
FSH Society Mid-Atlantic Patient Support Group Meeting Sept. 28, 2013
[…] Ann Curl of Medstar Harbor Hospital is a world authority on scapular fixation surgery for FSHD patients. When she’s not fixing scapulae, she is busy repairing players on the Baltimore […]