[…] designer shoes. Three years ago, I developed a symptom called foot drop caused by my FSHD Type 2. The biggest loss, which came with losing my muscles that support my […]
More than a pretty pair of shoes
Compression belts help me look buff again
[…] like to share one of the most valuable tips I’ve had for dealing with “ FSHD belly.” My abdominal core muscles had become like weak balloons, displacing internal organs. It’s […]
For your eyes only
FSHD Drug Development Pipeline Growing numbers of companies and academic laboratories are pressing forward with early-stage drug development efforts. This chart shows how far various candidate anti-DUX4 drugs have […]
August Member Meetings!
[…] are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal is to establish community support, networking opportunities, and guidance […]
Dr. Anthony Romeo on scapular surgery
One of the classic symptoms of FSHD is “scapular winging.” The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel’s wing. This […]