[…] pain, waiting for someone to come pick me up and possibly hurt me more in the process. It indeed has been a lifesaver. Dani Liptak in her Stronger than FSHD shirt
Tips and Tricks – The IndeeLift
Dr. Anthony Romeo on scapular surgery
One of the classic symptoms of FSHD is “scapular winging.” The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel’s wing. This […]
Compression belts help me look buff again
[…] like to share one of the most valuable tips I’ve had for dealing with “ FSHD belly.” My abdominal core muscles had become like weak balloons, displacing internal organs. It’s […]
More than a pretty pair of shoes
[…] designer shoes. Three years ago, I developed a symptom called foot drop caused by my FSHD Type 2. The biggest loss, which came with losing my muscles that support my […]
Donate tissue
Tissue donated by FSHD patients is essential for new discoveries that can lead to treatments, and, eventually, to a cure. Please consider the valuable gift to research of tissue donation […]