The Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place […]
Walk & Roll to Cure FSHD – All Your Questions Answered!
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced the introduction of the first-ever care guideline for FSHD by the American […]
2018 FSHD Connect preliminary agenda
We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather […]
Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD
[…] the FSH Society has worked with the drug’s developer, Acceleron Pharma, to better understand how FSHD affects patients through a survey (see story here) as well as to educate patients […]
Better Nutrition for FSHD
[…] disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey to better nutrition for FSHD and […]