[…] met Dr. Treidler at Stony Brook University, Long Island, NY, where she diagnosed me with FSHD. I had already seen many Doctors before our meeting who really didn’t know what […]
Gratitude and good wishes
Design to thrive
[…] renovate her condominium so that it was easier for her to live in as her FSHD symptoms progressed. Her goal was not merely to improve accessibility but to create a […]
Stay warm and safe
[…] Hour invited Dr. Mark Tarnopolsky of McMaster University to discuss an issue that many with FSHD face in winter: feeling especially susceptible to cold temperatures. He explains the role of […]
Feeling Fit: Exercising your hands and arms
[…] experience weakness that affects their hands, wrists, and forearms. In our March Feeling Fit with FSHD Zoom sessions, Frank Hanley takes you through exercises to keep your hands and arms […]
Raising our voice to raise our seats!
[…] the truth of this statement took place over the last several months, right within our FSHD community. We learned that Medicare initiated a process to receive comments and stories answering […]