Tissue donated by FSHD patients is essential for new discoveries that can lead to treatments, and, eventually, to a cure. Please consider the valuable gift to research of tissue donation […]
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Remembering Carol Perez
[…] of Carol Anne Perez’s death at age 76, on February 3, 2012, from respiratory complications of FSHD. Many patients remember Carol as the person on the other end of the phone […]
FSH Watch Summer/Fall 2014 issue is out
[…] include: Annual research report, with updates from FSH Society grant recipients. Groundbreaking study establishing that FSHD may be the most prevalent of muscular dystrophies. A new NIH-funded Wellstone Center for […]
FSH Watch Winter 2009
[…] University of Maryland, Baltimore Jacobs Family Post-doctoral Research Award established. Family picnic raises funds for FSHD fellowship. FSH Society Annual Donor Report And much more! Read or download the full […]
FSH Watch Spring 2009
Highlights include: First muscle biopsies arrive at the NIH BBRI Senator Paul Wellstone FSHD Center Charity Navigator rates FSH Society ✭✭✭✭! A festive evening of music and song raises over […]