[…] common household material keeps my feet from slipping by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one must […]
Tips & tricks for standing up
DIY Toolkit
[…] includes social media resources, tips and tricks, and Frequently Asked Questions. Social media resources including FSHD Society Logos and images for use on social media can be found in the […]
Fall vaccine guide
[…] severely ill and being bedridden for a time can result in loss of muscle. With FSHD, it is that much more difficult to recover muscle volume and strength. Respiratory illness […]
Meet Kyle Bennett, snowboarder
[…] will change my life forever,” he says. His dream is to show younger kids with FSHD that their love of sport doesn’t have to end with their diagnosis. This is […]
How my progressive disease taught me that it’s okay to be human
[…] my home, regardless that it’s now incredibly hard to stand and walk. Yes I have FSHD (facioscapulohumeral dystrophy), a type of muscular dystrophy that slowly takes away my mobility. I […]