[…] business organization and transactions from his office in Cape Cod, Massachusetts. Bob was diagnosed with FSHD at the age of 14 and had been active with the FSH Society since […]
In Memorium: Remembering Robert F. Smith, J.D., long-time FSH Society Board member
The Ticket in the Street
[…] reaction. This was the day I was diagnosed with FSH muscular dystrophy. Facioscapulohumeral dystrophy ( FSHD) is a progressive type of muscular dystrophy that atrophies the skeletal muscles of the […]
Steven Blier and Julia Bullock Perform to Benefit Muscular Dystrophy Research
[…] $250. All proceeds will go to the FSH Society. Steven Blier, who was diagnosed with FSHD as a child, is a renowned pianist and Master Coach to the San Francisco […]
21st Century Cures passes the U.S. House
[…] Congress on FY2016 spending urged lawmakers to call for NIH to increase annual spending on FSHD research from the current $7 million to $21 million. The Act, which requires the […]
FSH Society Ambassador is crowned Ms. Wheelchair USA
[…] and receive a $5,000 donation from sponsor Munzee. Congratulations Skylar!! You are an inspiring young woman, a great advocate for the FSHD and disabled communities. Read more about Skylar’s mission here.