[…] all rely on support from generous donors to continue propelling us toward the cure for FSHD – please donate this #GivingTuesday to ensure that a treatment will be in the […]
#GivingTuesday matching gift challenge!
Freedom Through AFOs
[…] could with my old, plastic AFOs. This is a key point, because when you have FSHD, it is important to remain as active as possible to keep muscles from deteriorating. […]
Talk radio: Skylar Conover, Ms Wheelchair USA
[…] married and become a parent. She’ll share her life story and observations about living with FSHD, and, of course, working with her service dog. To learn more about Skylar, read […]
Me and my cowboy boots
[…] closet for several years. He was happy to have them. When I was diagnosed with FSHD in 1994, I was terrified by the thought that I might have to use […]
Talk Radio: The FSH Society launches national chapter program
[…] alone. Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a […]