Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop […]
How to launch your own chapter or Walk & Roll [VIDEO]
Danny Kurtzman designs for life
[…] his clothing line appeals. Kurtzman and his younger brother (who passed away in 2008 from FSHD) were diagnosed in childhood. “My parents told me and my brother that you’re going […]
MRI-guided biopsy shows promise for clinical trials
[…] shower of toxic molecular events. This idea lies behind a flurry of efforts to treat FSHD through drugs and gene therapies designed to repress DUX4. But proving that DUX4 causes […]
Our annual report card [2018]
[…] stem cells, CRISPR, new treatment strategies, and more than $100 million of private investment in FSHD therapies. Thanks to you, we are launching the FSHD Therapeutic Accelerator Project to remove […]
#GivingTuesday matching gift challenge!
[…] all rely on support from generous donors to continue propelling us toward the cure for FSHD – please donate this #GivingTuesday to ensure that a treatment will be in the […]