[…] help find a cure & provide support for those affected by FSH muscular dystrophy # FSHD: https://bit.ly/GivingTuesdayFSHD (or use the link for your personal Facebook fundraiser). As this is an event largely […]
Double your impact this #GivingTuesday
FSH Society Talk Radio – Max Adler is our November guest!
[…] FSH Society’s Celebrity Walk ‘n’ Roll, which was held in Irvine, California, from 2011 to 2014. Join us to hear his FSHD story and learn about his career and current projects.
Rediscovering the Freedom of Bicycling
[…] family, and the bike rides were becoming shorter. Having been diagnosed at age 12 with FSHD, I felt lucky that I had been able to ride a bike as long […]
FSH Society Talk Radio launches first episode
[…] pilot episode, an interview with FSH Society executive director June Kinoshita, who answers questions about current research, clinical trials, and the FSH Society’s role in supporting and educating the FSHD community.
You’re invited! Mobility impact study
[…] and is a professor in the College of Engineering at Wichita State University. He has FSHD and is working on projects to help improve accessibility for people with disabilities. He […]