[…] Here are the findings, summarized in a slide presentation given by June Kinoshita, FSH Society executive director, at the European Neuromuscular Center’s international workshop on FSHD patient registries. Download here: FSHSociety-ENMC Workshop
On patient registries: findings from our suvey
Barbara Chin leaves an enduring legacy
[…] Barbara changed the lives of many patients and families through her peer counseling. The entire FSHD community owes her so much. Barbara’s bequest helps ensure that future generations will enjoy lives free […]
FSH Society’s first Open House!
[…] an organization to better serve you and reach our goal of finding a cure for FSHD. This will be a great opportunity to meet many of the staff members in […]
Get our new Bach 2 Bowie T-shirt!
[…] care and concern for the health and well being of individuals and families affected by FSHD. Net proceeds support the FSH Society. Deadline March 30. A minimum of 25 orders must […]
2017 RAAM Kickoff Dinner
[…] at 450 Bedford Street, Lexington, MA 02420 along with donor information. Learn more about Team FSHD Cycling here! Volunteers & Committees forming now for: Raffles, Auction Items, Media contacts, Donations, […]