[…] pilot episode, an interview with FSH Society executive director June Kinoshita, who answers questions about current research, clinical trials, and the FSH Society’s role in supporting and educating the FSHD community.
FSH Society Talk Radio launches first episode
FSH Society Talk Radio – Max Adler is our November guest!
[…] FSH Society’s Celebrity Walk ‘n’ Roll, which was held in Irvine, California, from 2011 to 2014. Join us to hear his FSHD story and learn about his career and current projects.
Double your impact this #GivingTuesday
[…] help find a cure & provide support for those affected by FSH muscular dystrophy # FSHD: https://bit.ly/GivingTuesdayFSHD (or use the link for your personal Facebook fundraiser). As this is an event largely […]
Rediscovering the Freedom of Bicycling
[…] family, and the bike rides were becoming shorter. Having been diagnosed at age 12 with FSHD, I felt lucky that I had been able to ride a bike as long […]
Win a day of self-care with Hollywood star Debby Ryan!
[…] Facebook and 4 million Twitter followers, so her ability to get the word out about FSHD is huge! We are so grateful to her for supporting us! Read more about […]