[…] asymptomatic. I am still fairly active. Prior to my genetic diagnosis of being positive for FSHD in 2011, I ran two NYC marathons in 2008 and 2009. I am thinking […]
Ask the Physical Therapist: Running a Marathon and Customized Workouts
Teachable moments
[…] other that allowing ourselves to grieve when we experience a loss in our fight over FSHD is quite important, so that we can get back up and continue to live […]
“Into the Light” – The story of the FSH Society
[…] years, this is your story. Please share this with others to help them understand what FSHD is, the great progress that has been made, and how their support can lead […]
Step by step. Inch by inch
[…] higher. Would I have followed his instructions if I had known that my problem was FSHD? Sadly, the answer would have been no. I would have dismissed the diagnosis as […]
Adventures with a robotic leg brace
[…] to find the right adaptive equipment we need to help us navigate the progression of FSHD. My search to stay mobile for as long as possible has led me to […]