[…] a cure, as his son Jimmy and his wife Barbara, both now deceased, suffered from FSHD. “I am committed to our goal of having a disease-modifying drug to our families […]
Jim Chin elected chair of FSH Society Board of Directors
Talk Radio: The FSH Society launches national chapter program
[…] alone. Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a […]
Me and my cowboy boots
[…] closet for several years. He was happy to have them. When I was diagnosed with FSHD in 1994, I was terrified by the thought that I might have to use […]
Talk radio: Skylar Conover, Ms Wheelchair USA
[…] married and become a parent. She’ll share her life story and observations about living with FSHD, and, of course, working with her service dog. To learn more about Skylar, read […]
#GivingTuesday matching gift challenge!
[…] all rely on support from generous donors to continue propelling us toward the cure for FSHD – please donate this #GivingTuesday to ensure that a treatment will be in the […]