[…] one should have an education/empowerment component. 1+ Fundraiser per year (Walk & Roll to Cure FSHD or other of your choosing) Future Chapter Interest If you’re ready to jump in […]
Join or Start a Chapter
Women on Wellness (monthly Zoom)
[…] our mutual support and social group for women of all ages who are living with FSHD. We created this women-only space to discuss health, self-care, and any other topics that […]
Re-igniting my passion
[…] topic, “Discovering Your Strengths.” She helped us see how our strengths can contribute to the FSHD Society in a variety of ways via education, fundraising, advocacy, support, and fun. While […]
Feeling Fit: Exercises for the neck and shoulders
[…] style Kung Fu, Taijiquan and multiple Qigong styles and practices. He organized and launched the FSHD Society South Carolina Chapter and served as Chapter Director. Frank designed this session to […]
Adventures with a robotic leg brace
[…] to find the right adaptive equipment we need to help us navigate the progression of FSHD. My search to stay mobile for as long as possible has led me to […]