The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last […]
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
$133,254 awarded to FSHD Clinical Trials Research Network
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of […]
The 2018 FSHD International Research Congress
[…] an effort to uncover targets for therapy. Over the past decade, research has shown that FSHD is caused by dysregulation of the disease locus, either by a contraction of the […]
2018 FSHD Connect Conference
[…] Rys, Port St. John, Florida As a first-timer, I was very excited to attend the 2018 FSHD Connect Conference held in Las Vegas, Nevada, this year. As we boarded the plane […]
Dan Levy’s FSHD family story
[…] have seen our posts about actor Dan Levy’s Omaze campaign to raise funds for the FSHD Society but you may not know his family story and his connection to FSHD. […]