[…] natural history study designed to inform the development of therapies for facioscapulohumeral muscular dystrophy ( FSHD). ReSolve (Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD) is an observational study run […]
Dyne Therapeutics to support ReSolve study of FSHD
Team FSHD Skyland Trail will compete in the 2019 Race Across America
From PRWeb FSHD Skyland Trail Cycling Team Logo The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds […]
2018 FSHD Connect Conference
[…] Rys, Port St. John, Florida As a first-timer, I was very excited to attend the 2018 FSHD Connect Conference held in Las Vegas, Nevada, this year. As we boarded the plane […]
The 2018 FSHD International Research Congress
[…] an effort to uncover targets for therapy. Over the past decade, research has shown that FSHD is caused by dysregulation of the disease locus, either by a contraction of the […]
$133,254 awarded to FSHD Clinical Trials Research Network
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of […]