by Jennifer Egert, PhD, New York City After being involved with the FSHD Society for more than 10 years, participating in fundraisers, social media, and events, I finally made it […]
FSHD Connect is a game changer
27th Annual FSHD International Research Congress Goes Virtual
The FSHD Society announced the opening today of its 27th annual International Research Congress (IRC), which is being conducted entirely online for the first time in the organization’s history. The conference […]
Teen with FSHD is in top 40 of Science Talent Search
[…] North Carolina Wilmington. Using validated survey instruments, she created a questionnaire which was emailed to FSHD Society members. Some 690 people completed the survey. Statistical analysis of the data found […]
New frontiers in muscle regeneration for FSHD
[…] past few years, there has been an increase in the number of pharmaceutical companies developing FSHD therapeutics. These strategies primarily focus on blocking DUX4, the toxic element that causes FSHD. […]
Avidity Biosciences announces Phase 1/2 trial for FSHD
[…] Drug Administration (FDA) cleared the company’s investigational new drug (IND) applications of AOC 1020 for FSHD as well as of a second drug, AOC 1044, for the treatment of Duchenne […]