by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the […]
Team FSHD Cycling eyes epic race in June 2017
Study uncovers new proteins involved in regulating FSHD-linked gene
[…] A new study has revealed more players in the pathway of facioscapulohumeral muscular dystrophy, or FSHD, the most common form of muscular dystrophy. Led by Fred Hutchinson Cancer Research Center […]
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise, […]
International FSHD Patient Advocacy Summit
[…] patient advocates from 13 organizations and 11 nations gathered in Marseille for the first-ever International FSHD Patient Advocacy Summit to discuss global collaboration and coordination. The conference was sponsored by […]
FSHD and COVID-19
[…] to share some information provided by our panel of medical advisors. For most individuals with FSHD, the risk of serious illness from COVID-19 infection is the same as the general […]