by Jennifer Egert, PhD, New York City After being involved with the FSHD Society for more than 10 years, participating in fundraisers, social media, and events, I finally made it […]
FSHD Connect is a game changer
Dan Levy’s FSHD family story
[…] have seen our posts about actor Dan Levy’s Omaze campaign to raise funds for the FSHD Society but you may not know his family story and his connection to FSHD. […]
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise, […]
Team FSHD Cycling eyes epic race in June 2017
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the […]
Understanding your FSHD
[…] have had with your doctor the first time you tried to tell them of your FSHD symptoms. I was 16 then, and although I had good physical awareness, I lacked […]