Great.com interviews FSHD Socıety about Curing FSHD While Empowering Affected Families Danielle Riberio from Great.com interviewed Mark Stone, CEO of FSHD Society, as part of their ‘Great.com Talks With…’ podcast. […]
On a Mission to Cure FSHD
Anyone can MOVE for FSHD research
[…] what’s called an “observational” or “natural history” study of people with facioscapulohumeral muscular dystrophy ( FSHD) that evaluates how symptoms and abilities change over a period of time. It is […]
FSHD and COVID-19
[…] to share some information provided by our panel of medical advisors. For most individuals with FSHD, the risk of serious illness from COVID-19 infection is the same as the general […]
Study uncovers new proteins involved in regulating FSHD-linked gene
[…] A new study has revealed more players in the pathway of facioscapulohumeral muscular dystrophy, or FSHD, the most common form of muscular dystrophy. Led by Fred Hutchinson Cancer Research Center […]
International FSHD Patient Advocacy Summit
[…] patient advocates from 13 organizations and 11 nations gathered in Marseille for the first-ever International FSHD Patient Advocacy Summit to discuss global collaboration and coordination. The conference was sponsored by […]