[…] what’s called an “observational” or “natural history” study of people with facioscapulohumeral muscular dystrophy ( FSHD) that evaluates how symptoms and abilities change over a period of time. It is […]
Anyone can MOVE for FSHD research
On a Mission to Cure FSHD
Great.com interviews FSHD Socıety about Curing FSHD While Empowering Affected Families Danielle Riberio from Great.com interviewed Mark Stone, CEO of FSHD Society, as part of their ‘Great.com Talks With…’ podcast. […]
Understanding your FSHD
[…] have had with your doctor the first time you tried to tell them of your FSHD symptoms. I was 16 then, and although I had good physical awareness, I lacked […]
Human Muscle Growing in Mice Provides a New Research Tool for FSHD
[…] from the FSH Society, a patient-driven nonprofit, has enabled people with facioscapulohumeral muscular dystrophy ( FSHD) to donate muscle tissue, which scientists have succeeded in grafting into mice, providing a […]
Ultragenyx Pharmaceutical to sponsor FSHD drug development project
[…] on the development of small molecule therapeutics for the potential treatment of Facioscapulohumeral Muscular Dystrophy ( FSHD). The SLU team is led by Fran Sverdrup, PhD, whose lab has been supported […]