Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are […]
Mid-Atlantic FSHD Family Day presentations
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
[…] my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease that basically […]
Bay Area FSHD Family Day Conference
[…] here! Stephen Tapscott, MD PhD Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li […]
Many “Firsts” for the 26th Annual FSHD International Research Congress
[…] global platform for the discussion and dissemination of state-of-the-art research on facioscapulohumeral muscular dystrophy ( FSHD). Nearly 200 researchers, clinicians, industry representatives and patient advocates are attending. Researchers who have […]
World FSHD Day 2019 highlights
World FSHD Day was a HUGE Success! Thank you to all of you who hosted events and participated! Here are a few highlights: The Tampa Chapter and George Pollock Raced Across America with […]