[…] global platform for the discussion and dissemination of state-of-the-art research on facioscapulohumeral muscular dystrophy ( FSHD). Nearly 200 researchers, clinicians, industry representatives and patient advocates are attending. Researchers who have […]
Many “Firsts” for the 26th Annual FSHD International Research Congress
Bay Area FSHD Family Day Conference
[…] here! Stephen Tapscott, MD PhD Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li […]
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
[…] my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease that basically […]
Webinar on swallowing and speech in FSHD
[…] in the Department of Neurology at Virginia Commonwealth University. Berggren was previously part of the FSHD Clinical Trial Research Network (CTRN) site at the University of Utah and moved to […]
FDA orphan drug designation for Genea Biocells’ FSHD drug candidate
[…] Administration (FDA) for its therapeutic candidate, GBC0905, for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Scientists from Genea Biocells will be attending the FSH Society’s International Research Conference and […]