World FSHD Day is right around the corner and we know you want to be ready to raise awareness. The Society’s World FSHD Day t-shirts are here in the official […]
World FSHD T-shirts are here!
FDA orphan drug designation for Genea Biocells’ FSHD drug candidate
[…] Administration (FDA) for its therapeutic candidate, GBC0905, for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Scientists from Genea Biocells will be attending the FSH Society’s International Research Conference and […]
Webinar on swallowing and speech in FSHD
[…] in the Department of Neurology at Virginia Commonwealth University. Berggren was previously part of the FSHD Clinical Trial Research Network (CTRN) site at the University of Utah and moved to […]
ABC’s of Clinical Trials for FSHD [VIDEO]
We’re pleased to share with you this video recording from the FSHD Society’s webinar, “ABC’s of Clinical Trials,” given on December 7, 2019. Our webinar speaker is Rabi Tawil […]
Telemedicine for FSHD
Telemedicine for FSHD is an idea whose time has come! If people with FSHD are rare, doctors who understand FSHD are rarer still. Patients who don’t have the time or […]