Good Bad Things breaks barriers and earns accolades by Erin Saxon, FSHD Society In August, we shared exciting news about Good Bad Things, a film that promised to challenge perceptions […]
FSHD Representation in Film Fest Favorite ‘Good Bad Things’
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness
[…] organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced its Honorary Board. The board of fourteen distinguished celebrities will work in […]
Rocking the boat with FSHD – The Ryan Levinson Story
[…] Lynn Photography. Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy ( FSHD) in 1996. Though he suffers from muscle loss typical of most people with FSHD, […]
aTyr Receives U.S. FDA Orphan Designation for FSHD drug
[…] the U.S. Food and Drug Administration (FDA) for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). Resolaris, an investigational new drug representing aTyr’s first Physiocrine-based product candidate in the clinic, is […]
Facio partners with Evotec and initiates FSHD drug discovery program
[…] the identification of compounds showing activity as a potential treatment to stop the progression of FSHD. This agreement marks the start of finding a drug to overcome FSHD. Facio’s drug […]