Telemedicine for FSHD is an idea whose time has come! If people with FSHD are rare, doctors who understand FSHD are rarer still. Patients who don’t have the time or […]
Telemedicine for FSHD
ABC’s of Clinical Trials for FSHD [VIDEO]
We’re pleased to share with you this video recording from the FSHD Society’s webinar, “ABC’s of Clinical Trials,” given on December 7, 2019. Our webinar speaker is Rabi Tawil […]
New biotech targets FSHD
Three entrepreneurs who have been affected personally by FSHD announced at this year’s FSHD Champions meeting that they have established a biotech dedicated to developing a treatment for FSHD. The new […]
Follistatin gene therapy strengthens muscle in FSHD mouse model
[…] shown to enlarge and strengthen muscles in a mouse model of facioscapulohumeral muscular dystrophy ( FSHD). The study was published on November 15 in the Journal of Clinical Investigation Insight […]
Los Angeles FSHD Family Day videos
We are pleased to share these videos from our 2017 FSHD Family Day conference in Los Angeles, held on October 21, 2017. We are so grateful to Laurie Heyman and […]