[…] for editing and will not appear after you publish the changes. Preview modal- Join BetterLife FSHD Today! https://www.fshdsociety.org/wp-content/uploads/2024/05/Welcome-to-BetterLife-Final-with-updated-logo.mp4 Sign up here! What is FSHD? Facioscapulohumeral muscular dystrophy, or FSHD, is […]
What is FSHD
The children of FSHD – they exist, too
[…] years ago, as we started to hear about clinical trials for promising new drugs for FSHD, I was frustrated to learn that my son Sam was too young to participate. […]
FSHD Canada Foundation awards $2.8 million to CTRN
by June Kinoshita, FSHD Society The FSHD Canada Foundation, a close partner and fellow traveler of the FSHD Society since its founders Neil Camarta and Craig Kelley first met in […]
FSHD University
Go to the video playlist FSHD University is your center for education about the art and science of living with FSH muscular dystrophy. We focus on three “departments” – Physical […]
Finding FSHD: the story of DUX4 in a zebrafish
[…] models that represent the disease in a controlled laboratory setting. However, in the case of FSHD, creating an animal model which accurately represents the human disease has proven difficult. One […]