[…] York are conducting a research study to learn more about a potential symptomatic therapy for FSHD. This study may help determine if a combination of drugs (recombinant human growth hormone […]
Testosterone and human growth hormone clinical trial for FSHD
Bone Health and FSHD
[…] in Muscle & Nerve begins to address this question. This is a topic that many FSHD patients worry about, because weaker muscles lead to more falls, and fractured bones take […]
Team Fundraising for World FSHD Day
[…] America. It is truly inspiring and worth sharing. Dear Friends, To mark this year’s World FSHD Day, on June 20th, I am asking you to help raise global visibility and […]
Is MRI the “holy grail” for FSHD clinical trials?
The MOVE+ study aims to find out. Participants needed! by June Kinoshita, FSHD Society Courtesy of GE Imagine that you are in an FSHD clinical trial a few years in […]
His father’s FSHD inspired scientist to make a breakthrough
[…] of emails cross my desk every day, but one that came last September from an FSHD patient pulled me right down a rabbit hole that proved to be fantastic. It […]