The FSHD Clinical Trial Research Network (CTRN) has expanded to eight sites in the U.S. with the addition of Virginia Commonwealth University (VCU) in Richmond, Virginia. The VCU site is […]
Virginia Commonwealth University joins FSHD network
TikTok to participate in World FSHD Day
[…] is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship was cultivated by our friends at FSHD China. […]
Fulcrum Announces Initiation of ReDUX4, a Phase 2b Clinical Trial of Losmapimod for FSHD
[…] announced it has initiated ReDUX4, a Phase 2b clinical trial of losmapimod in facioscapulohumeral muscular dystrophy ( FSHD). The clinical trial is designed to evaluate the efficacy and safety of losmapimod, an […]
Ayurvedic medicine for FSHD – My story
[…] one more time before ‘going public’ with it, or at least run it by an FSHD clinician who practices Western medicine. Today I can confidently say that I’ve met the […]
Genetic testing for FSHD in Asia
[…] with a comprehensive diagnostics and treatment options for muscular dystrophies including Facioscapulohumeral Muscular Dystrophy ( FSHD). PanRARE connects patients, doctors, academia, key opinion leaders, drug discovery and development enterprises and […]