[…] of emails cross my desk every day, but one that came last September from an FSHD patient pulled me right down a rabbit hole that proved to be fantastic. It […]
His father’s FSHD inspired scientist to make a breakthrough
The FSHD Advocate
The FSHD Advocate Our feature-packed, thrice-a-year magazine can now be enjoyed in digital format. FSHD Advocate‘s purpose is to educate & empower our community to accelerate the developments of treatments. […]
Is MRI the “holy grail” for FSHD clinical trials?
The MOVE+ study aims to find out. Participants needed! by June Kinoshita, FSHD Society Courtesy of GE Imagine that you are in an FSHD clinical trial a few years in […]
Important paper on FSHD published in Human Molecular Genetics
Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary […]
Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting
2012 Facioscapulohumeral Muscular Dystrophy ( FSHD) International Research Consortium Meeting for FSHD research professionals held in San Francisco was a success! Progress in FSHD Muscular Dystrophy Research Hailed at International […]