[…] Lynn Photography. Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy ( FSHD) in 1996. Though he suffers from muscle loss typical of most people with FSHD, […]
Rocking the boat with FSHD – The Ryan Levinson Story
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness
[…] organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced its Honorary Board. The board of fourteen distinguished celebrities will work in […]
Fulcrum Announces Initiation of ReDUX4, a Phase 2b Clinical Trial of Losmapimod for FSHD
[…] announced it has initiated ReDUX4, a Phase 2b clinical trial of losmapimod in facioscapulohumeral muscular dystrophy ( FSHD). The clinical trial is designed to evaluate the efficacy and safety of losmapimod, an […]
TikTok to participate in World FSHD Day
[…] is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship was cultivated by our friends at FSHD China. […]
Virginia Commonwealth University joins FSHD network
The FSHD Clinical Trial Research Network (CTRN) has expanded to eight sites in the U.S. with the addition of Virginia Commonwealth University (VCU) in Richmond, Virginia. The VCU site is […]