You are not alone. Our chapters are here for you. We are the FSHD Society, a sprawling community of individuals with FSHD, their families, friends, and advocates. We include researchers […]
Meet others living with FSHD
FSHD Masterclass
Masterclass on facioscapulohumeral muscular dystrophy ( FSHD) NOTE: CME accreditation for our on-demand masterclass on facioscapulohumeral muscular dystrophy (FSHD) expired on September 30, 2023. This course is still timely and […]
Choice of transcriptional direction from each D4Z4 unit is an additional requirement for DUX4 production and having FSHD
FSHD research teams in Seattle, Rochester and Leiden add to the existing FSHD model loss of heterochromatin at D4Z4 and the presence of a specific haplotype on chromosome 4 […]
High-profile paper on FSHD published in Cell
High-profile paper on FSHD published in Cell by Drs. Davide Gabellini and Daphne Cabianca in Milan, Italy. There are three distinct messages in the paper: 1. FSH Society funding leads to […]
FSHD Connect Scholarship Program
[…] We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s FSHD Connect […]