[…] Backyard 3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM A gathering for people with FSHD from the Los Angeles region, for networking, learning, advocacy and more! Organized by the […]
Join Our Los Angeles FSHD CONNECTS Meeting!
2016 FSHD Connect Conference
[…] Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day super-conference. Our events begin on November 10-11 with Research Connect […]
2016 FSHD Patient Connect Conference
[…] Presentations and breakout sessions slides can be downloaded by clicking on the highlighted titles* below: FSHD Science 101. Alexandra Belayew, PhD (VIDEO) Genetics and genetic testing. Silvere van der Maarel, PhD […]
Mid-Atlantic FSHD Family Day registration is open
The preliminary agenda and registration are now available for our first Mid-Atlantic FSHD Family Day Conference. It will be held in Baltimore, MD. Co-organized with Kathryn Wagner, MD PhD, and […]
Walk & Roll to Cure FSHD is coming next month!
[…] and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature fundraising event is […]