You can now register for the FSHD Family Day Conference in Kansas City, taking place on November 10. Registration is free but required so that we have accurate numbers of […]
Kansas City FSHD Family Day registration now open
A slam poet’s take on living with FSHD
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations! […]
FSHD Advocate is out!
The latest issue of our flagship magazine, FSHD Advocate, has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a […]
Hot off the press: FSHD Advocate
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here […]
FSHD goes to school
[…] give kids an explanation they can digest. I was casually talking to one of the FSHD team members at Fulcrum Therapeutics (a biopharma working on FSHD therapies) about our daughter’s […]