[…] that we believe will see effective therapies become available – the families that form the FSHD Society face new challenges. This year, we have an unprecedented opportunity to participate in […]
FSHD Advocate on the Road to Clinical Trials
“Coming out” with my FSHD diagnosis
This story about “coming out” with an FSHD diagnosis was first published in the 2014 summer issue of the FSH Watch newsletter. Its message is timeless. The #FSHDselfies campaign by […]
Arrowhead Pharmaceuticals announces FSHD drug candidate
[…] homeobox 4 (DUX4) protein as a potential treatment for patients with facioscapulohumeral muscular dystrophy ( FSHD). Pending abstract acceptance, Arrowhead intends to present preclinical data on ARO-DUX4 at the 28th Annual FSHD […]
FSHD Masterclass for physicians is available on-demand
[…] who took the live version said they would recommend this course to their colleagues. The FSHD Society’s highly rated CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD) is now available on-demand. […]
FSHD Inspires Sam Ray to Build Mobility Devices
[…] but not for me. It’s not because I’m unhappy. It’s because I have facioscapulohumeral muscular dystrophy ( FSHD), a rare genetic disease characterized by progressive skeletal muscle loss that usually begins in […]