[…] our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which is generally understood to be more severe […]
An update on early-onset FSHD
Ohio FSHD Family Day Conference
Strengthening our network in the Midwest The FSHD Family Day Conference, hosted by Nationwide Children’s Hospital and the FSH Society on June 11, 2017, drew about 70 patients, families, researchers, […]
SOLVE FSHD Invests US $1 Million in miRecule
[…] 2022 (View original source.) – miRecule, Inc., an innovator of next-generation RNA therapeutics, and SOLVE FSHD, a venture-philanthropy organization catalyzing the pace of innovation to accelerate a cure for facioscapulohumeral […]
Consensus Reached to Move Forward with Formation of International Global FSHD Patient Registry
[…] 2017) – Today the FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy ( FSHD), announced that with the FSHD Champions, an international alliance of FSHD patient advocacy organizations, […]
Global FSHD Registry Workshop
Participants at the ENMC workshop of FSHD registries International workshop in November reaches consensus on a global FSHD patient registry. If you are an individual with FSHD, or a family member, […]