[…] We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s FSHD Connect […]
FSHD Connect Scholarship Program
Hot off the press: FSHD Advocate
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here […]
FSHD Advocate is out!
The latest issue of our flagship magazine, FSHD Advocate, has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a […]
A slam poet’s take on living with FSHD
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations! […]
Don Nemke’s Tips for Living with FSHD
[…] in an advanced stage of FSH and recently fully wheelchair-bound. As an older patient with FSHD muscular dystrophy I have decades of experience with adapting to an ever-changing body and […]