[…] very happy to learn that there was no fat at all. When I saw my FSHD neurologist after the surgery, he said (in his understated way) “this could be shared.” […]
Distended belly with FSHD: A surgical reconstruction
FSHD advocate in film about Apple Personal Voice
[…] Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in honor of International Day of Persons with Disabilities, observed […]
Join the Movement to End FSHD
The Walk & Roll to Cure FSHD is the only international event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place […]
Our latest publication from FSH Society’s Living with FSHD Series is now available!
Our latest publication from FSH Society’s Living with FSHD Series is now available! For details HERE. To read the “FSHD: A Guide for Schools” on-line PDF
FSH Society grantees publish new paper “RNA Interference Inhibits DUX4-induced Muscle Toxicity In Vivo: Implications for a Targeted FSHD Therapy”
[…] publish new paper “RNA Interference Inhibits DUX4-induced Muscle Toxicity In Vivo: Implications for a Targeted FSHD Therapy” in The American Society of Gene & Cell Therapy providing proof-of-principle for RNAi therapy […]