[…] the FSH Society’s Board of Directors, Abilene-resident Wendy Shack has been hoping to gather the region’s FSHD patients and families for a meeting. Last Saturday, she saw the fruits of her […]
In Dallas, many meet another with FSHD for the first time
FSHD imaging study is recruiting volunteers
The Kennedy Krieger Institute is recruiting volunteers with FSHD for a clinical research study. Volunteers will be asked to undergo muscle strength testing and non-invasive magnetic resonance imaging (MRI) and […]
Team FSHD Cycling crosses the finish line!
And here they are, our champions! Team FSHD Cycling at the Race Across America finish line in Annapolis last night! We couldn’t be more proud, and humbled, by this […]
“About FSHD” brochure is now available in Chinese!
Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China […]
Bay Area FSHD Family Day Conference Videos and Slides
[…] Kinoshita, executive director. Neil Solomon MD, and Howard Chabner JD FSH Society Board of Directors. FSHD 101: Genetics, Diagnosis, and Care Standards. John Day MD PhD, Director, Neuromuscular Division and […]