[…] WOW members for this valuable contribution. We are all on a different trajectory on this FSHD journey, and as such, our needs are different. Not everyone has symptoms of urinary […]
A delicate matter for female travelers with FSHD
Pain management in FSHD
[…] chronic pain Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to manage. In various studies, between 82 […]
A standing army for FSHD
[…] all set. But we still have two vital, unanswered questions: Are you a person with FSHD? Where do you live? We must have this information because our clinical trial alerts go out […]
Become involved with our FSHD Be Strong Campaign!
[…] FSH Society to support research and education in order to treat and cure patients with FSHD. See the shirt now! Our new shirt started with the idea to create something […]
An incredible night for FSHD thanks to Russell and the East Brunswick High School Boys Volleyball Team!
[…] to Russell Caratenuto, his coach and team for spreading more awareness about the importance of FSHD. The school not only embraced Russell and his efforts, but wants to make the […]