[…] chronic pain Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to manage. In various studies, between 82 […]
Pain management in FSHD
A delicate matter for female travelers with FSHD
[…] WOW members for this valuable contribution. We are all on a different trajectory on this FSHD journey, and as such, our needs are different. Not everyone has symptoms of urinary […]
Join the Movement to End FSHD
The Walk & Roll to Cure FSHD is the only international event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place […]
FSHD advocate in film about Apple Personal Voice
[…] Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in honor of International Day of Persons with Disabilities, observed […]
Distended belly with FSHD: A surgical reconstruction
[…] very happy to learn that there was no fat at all. When I saw my FSHD neurologist after the surgery, he said (in his understated way) “this could be shared.” […]