From the FSHD Society’s webinar series on facioscapulohumeral muscular dystrophy. Charis Himeda, PhD, of the University of Nevada Reno, discusses her groundbreaking work showing how CRISPR “gene editing” technology can […]
Charis Himeda talks about CRISPR and FSHD
Legendary festival to support FSHD Society
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan, […]
FSH Society Radio – Two perspectives on living with FSHD
[…] time for our live interview with two people from the Chicagoland area who live with FSHD. Ramsey Shahed is a 21 year old student at DePaul University studying for his master’s […]
And the new ICD-10 code for FSHD is…
[…] be easily recognized within a health information system. Assigning an individual ICD 10 codes for FSHD will: facilitate the surveillance of FSHD; will allow more accurate estimates of the condition’s […]
$1.2 Million MDA grant awarded to FSHD Clinical Trial Research Network
[…] the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to bring […]