[…] a locally-acting “Myostatin+” muscle agent, for the treatment of patients with facioscapulohumeral muscular dystrophy ( FSHD). “This is an important milestone in the development of ACE-083—our lead program within our […]
Acceleron Receives FDA Fast Track Designation for its FSHD drug
Activate a fundraiser for World FSHD Day!
[…] empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day (June 20th) and discover the incredible power of networking by starting your own […]
$1.2 Million MDA grant awarded to FSHD Clinical Trial Research Network
[…] the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to bring […]
And the new ICD-10 code for FSHD is…
[…] be easily recognized within a health information system. Assigning an individual ICD 10 codes for FSHD will: facilitate the surveillance of FSHD; will allow more accurate estimates of the condition’s […]
FSH Society Radio – Two perspectives on living with FSHD
[…] time for our live interview with two people from the Chicagoland area who live with FSHD. Ramsey Shahed is a 21 year old student at DePaul University studying for his master’s […]