[…] empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day (June 20th) and discover the incredible power of networking by starting your own […]
Activate a fundraiser for World FSHD Day!
Acceleron Receives FDA Fast Track Designation for its FSHD drug
[…] a locally-acting “Myostatin+” muscle agent, for the treatment of patients with facioscapulohumeral muscular dystrophy ( FSHD). “This is an important milestone in the development of ACE-083—our lead program within our […]
Living with FSHD – My journey to a diagnosis
[…] that I had muscular dystrophy. I strongly urge anyone who has a family history of FSHD to get genetically tested because although there is no cure today, this doesn’t meant […]
Mom and Daughter with FSHD featured in Muscular Dystrophy News!
[…] and Lexi Pappas, were featured in Muscular Dystrophy News, sharing their struggles about living with FSHD. Diane is Lexi’s mother and the two live in Massachusetts. Lexi shares both the […]
Help us advance FSHD research by taking our survey
[…] the survey now! Click here. The FSH Society is participating in an international workshop on FSHD patient registries later this week. We would like to share the patient and family perspective on […]