[…] the survey now! Click here. The FSH Society is participating in an international workshop on FSHD patient registries later this week. We would like to share the patient and family perspective on […]
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Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
Walk & Roll to Cure FSHD
[…] the Event can be viewed & purchased here: www.donijones.com (Go to clients > access code = FSHD, password = 2016) The Ruekert Family Doni & Marble Jones donated their time & […]
Shoulder dyskinesia in FSHD
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result […]
Tips for FSHD Travelers
[…] being able to travel again. But traveling with a disability imposes challenges too. On the FSHD Society Wellness Hour of April 12, 2021, guest speakers Ray Jordan and Carden Wyckoff […]