Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
Challenging the narrative: new film stars actor with FSHD
Walk & Roll to Cure FSHD
[…] the Event can be viewed & purchased here: www.donijones.com (Go to clients > access code = FSHD, password = 2016) The Ruekert Family Doni & Marble Jones donated their time & […]
Shoulder dyskinesia in FSHD
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result […]
Tips for FSHD Travelers
[…] being able to travel again. But traveling with a disability imposes challenges too. On the FSHD Society Wellness Hour of April 12, 2021, guest speakers Ray Jordan and Carden Wyckoff […]
FSHD Society participating in #GivingTuesdayNow
This May 5, the FSHD Society is participating in #GivingTuesdayNow. This is a global day of giving and unity that arose as an emergency response to the unprecedented need caused […]