Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful […]
Chicagoland FSHD Family Day on October 20
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to […]
European centers to collaborate on FSHD ReSOLVE study
Three European centers have agreed to collaborate with the FSHD Clinical Trial Research Network on its NIH UO1 grant-funded projects, notably ReSOLVE. In doing so, they join eight US members […]
Industry collaborative workshop on FSHD clinical trial readiness
[…] the FDA to facioscapulohumeral muscular dystrophy–the impact of the disease on individuals, why scientists think FSHD is treatable, and the progress that has been made toward clinical trials. The workshop […]
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for […]