Estamos muy contentos de anunciar que About FSHD, nuestro folleto esencial para todos los pacientes, familias, proveedores de atención primaria y otros, ha sido traducido al español. Damos las gracias […]
¡El folleto “About FSHD” ya está disponible en español!
Relive Team FSHD Cycling’s Race Across America!
https://vimeo.com/228261860 Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of […]
FSH Society Talk Radio on mindfulness in coping with FSHD
[…] liaison with patients and families. In 2011, Dr. Birnbaum lost her mother to complications related to FSHD. She is eager to promote the Society in its search for a cure and to offer […]
New FSHD biotech launched with $55 million
[…] Fragile X syndrome (FXS) and a form of muscular dystrophy called facioscapulohumeral muscular dystrophy ( FSHD). Each disease arises from a single gene mutation that creates an error in gene […]
Best practice guidelines on genetic diagnostics of FSHD are now available
Best practice guidelines on genetic diagnostics of FSHD are now available and published in the journal Neuromuscular Disorders! FSH Society sponsors workshop held June 9, 2010, in Leiden, The Netherlands. […]