[…] Arizona Group photo of the attendees at the European Neuromuscular Research Center’s workshop on pediatric FSHD. I was honored to attend the Pediatric FSHD European Neuromuscular Centre (ENMC) conference in […]
European Neuromuscular Centre Conference on Pediatric FSHD
FSHD and Rare Disease Day
[…] in 20 people will live with a rare disease at some point in their life. FSHD-a Rare Disease The National Organization of Rare Disorders (NORD) recognizes Fascioscapulohumeral Muscular Dystrophy (FSHD) […]
Intriguing research on tyrosine kinase inhibition as a potential therapy for FSHD: Sunitinib rescues muscle cells’ ability to develop
[…] of an FDA-approved drug, sunitinib, as having potential therapeutic activity for FSH muscular dystrophy ( FSHD). This research, sponsored by Muscular Dystrophy UK, the FSH Society, and the French Sunitinib […]
FSHD Clinical Trial Research Network expands to four new sites
Map of FSHD Clinical Trial Research Network sites The FSHD Society announced today that it has awarded $300,000 a year to expand the Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network (FSHD CTRN), […]
miRecule, Inc., is developing a novel treatment for FSHD
[…] and its founder Anthony Saleh, PhD, are hard at work developing a novel treatment for FSHD. In the early 2000s, Saleh was a graduate student at Johns Hopkins School of […]