[…] a regular basis. That planted the seed in my head that said, “if others with FSHD could do it, so can I.” I decided to download an app and try […]
FSHD Warrior Pose [VIDEO]
Everything you ever wanted to know about FSHD
[…] its symptoms and severity. Our webinar on May 22 will introduce the basic facts about FSHD for people who’ve just been diagnosed, or who want to brush up on their […]
“Building the house” for FSHD therapies
[…] develop drugs. They urgently want to know, what does it mean for a drug for FSHD to be “effective”? You might think this is a silly question. Isn’t the answer […]
aTyr Pharma releases results of early-onset FSHD trial
[…] results from its Phase 1b/2 003 trial assessing the safety and potential activity of Resolaris™ in patients with early onset facioscapulohumeral muscular dystrophy ( FSHD). Read the full press release here.
FSHD patient survey results presented at MDA Conference
[…] a committed and selfless community of patients,” said Kinoshita. “They inspire all of us at the FSH Society to work extra hard.” Click to download: MDA 2017 Poster – FSHD Patient Survey.