[…] this would be my year to compete in it. I used to always hide my FSHD, but something changed within me this year. I have opened up and I am […]
FSHD Stories: No more hiding
Talking to my FSHD
[…] disease. After thirty-two years, it was about time. “Are you willing to talk to me, FSHD? I know you are there.” “Yes.” “Can you tell me why you showed up […]
FSHD University Webinar – Fulcrum Clinical Trial Results
[…] data will be publicly presented for the first time earlier on June 24 at the FSHD Society’s International Research Congress. This webinar will be the first presentation of the data […]
FSHD drug development pipeline
[…] have progressed along the path to FDA approval. DUX4 is considered a key gene causing FSHD. The process begins with finding a “target,” or biological disease mechanism, that can be […]
Transforming the landscape for FSHD
[…] a cure. If you haven’t done so already, please take a minute to register as a member. We can’t win this fight without knowing who and where FSHD patients and families are.