[…] a cure. If you haven’t done so already, please take a minute to register as a member. We can’t win this fight without knowing who and where FSHD patients and families are.
Transforming the landscape for FSHD
Cure FSHD? Now is the time!
We can do more than simply aspire to a treatment in some undefined future. We are confident that, with your continued support, we will have treatments for FSH muscular dystrophy… Read More »
Our new FSHD 101 video
Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch… Read More »
How the FSH Society drives FSHD therapy development
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the… Read More »
It’s officially FSHD Awareness Day in Maryland!
Thank you to Missy Cassidy for submitting the request to the Governor’s office! Next year, let’s go for proclamations in all 50 states!