[…] in Baltimore, Maryland, answers some commonly asked questions. Q. What is the genetic cause of FSHD? Let me begin by saying that the genetics of FSHD is quite complex! There […]
FAQs about genetic testing for FSHD
Symptoms
Symptoms of FSHD Facioscapulohumeral muscular dystrophy (FSHD) is classified as a neuromuscular disease (NMD), as are all types of muscular dystrophy. Muscular dystrophies are marked by progressive skeletal muscle weakness, […]
World FSHD Alliance
The purpose of World FSHD Alliance is to connect and activate the FSHD community globally in order to build a worldwide community of activists, empower patients, and advance our shared […]
Just Received an FSHD Diagnosis?
[…] Are Here to Help! Whether you have a new diagnosis of facioscapulohumeral muscular dystrophy ( FSHD) or have been living with FSHD for some time and recently received genetic confirmation, […]
True Cost of FSHD
The FSHD Society is pleased to tell you about our study called “The True Cost of FSHD.” This is one of the most important and urgent survey-based studies we have […]