Parents’ Roundtable & International Chapter Serving Parents of Children with FSHD The Parents’ Roundtable & International Chapter is led by parents who know all too well the challenges of parenting […]
Early-Onset FSHD Chapter
New to FSHD? You are not alone
[…] for editing and will not appear after you publish the changes. Preview modal- Join BetterLife FSHD Today! https://www.fshdsociety.org/wp-content/uploads/2024/05/Welcome-to-BetterLife-Final-with-updated-logo.mp4 Sign up here! We Are Here to Help! Whether you have a […]
Press Release: FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access
FSHD Society Strengthens Leadership with Experts in Healthcare, Biotech, and Market Access FOR IMMEDIATE RELEASE RANDOLPH, Mass., Feb. 26, 2025 — The FSHD Society, a leading nonprofit dedicated to […]
Update on Early-Onset FSH Muscular Dystrophy Study
[…] quality of life By Yi-Wen Chen, PhD and Jean Mah, MD While most people with FSHD develop muscle weakness during late teen years or adulthood, about 4 percent of patients […]
Support Groups
The primary purpose of World FSHD Alliance is to connect and activate the FSHD community globally in order to build a worldwide community of activists, empower patients, and advance our […]