The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral […]
FSHD Society names Jamshid Arjomand, PhD, Chief Science Officer
Your involvement matters
Your data will power breakthroughs for FSHD When FSH Muscular Dystrophy impacts a family, they have one goal: to live their best life, which includes finding treatments and a cure. […]
We Are Not Alone
BY DAVE LUKAS CRYSTAL LAKE, ILLINOIS The inaugural Chicagoland Walk & Roll to Cure FSHD exceeded every expectation and goal I had. What an amazing day filled with family, community, […]
Physical Health
[…] to find that most doctors, therapists, and fitness trainers have little to no experience with FSHD. That’s just the reality of living with any rare disease, but you have the […]
Unleashing the Power of Collaboration: Achieving More for FSHD Together
by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website. On 11 May in Leiden, NL, the Project Mercury global task force members met for […]